Título :	From struggle to strength : a multicentric study on how public policies for celiac disease transform lives
Autor :	Aguiar, Ana Luísa Falcomer de Pratesi, Cláudia Balula Nakano, Eduardo Yoshio Chaves, Cláudia Nejad, Mohammad Rostami Guennouni, Morad Aksan, Ayşegül Pouchot, Jacques Häuser, Winfried Zandonadi, Renata Puppin
metadata.dc.identifier.orcid:	https://orcid.org/0000-0003-2752-4296 https://orcid.org/0000-0002-9071-8512 https://orcid.org/0000-0002-8103-7221 https://orcid.org/0000-0003-2495-1831 https://orcid.org/0000-0002-3963-1366 https://orcid.org/0000-0003-2819-3484 https://orcid.org/0000-0002-3742-729X https://orcid.org/0000-0003-0370-3089
metadata.dc.contributor.affiliation:	University of Brasilia, School of Health Sciences, Department of Nutrition University of New Mexico, College of Population Health, Albuquerque, USA University of Brasilia, Department of Statistics Polytechnic University of Viseu, ESSV, Centre for Studies in Education and Innovation (CI&DEI), Viseu, Portugal Shahid Beheshti University of Medical Sciences, Research Institute for Gastroenterology and Liver Diseases, Celiac Disease and Gluten Related Disorders Research Center, Tehran, Iran Chouaib Doukkali University of El Jadida, Higher School of Education and Training, Science and Technology Team, El Jadida, Morocco Hassan First University of Settat, Higher Institute of Health Sciences of Settat, Laboratory of Health Sciences and Technologies, Morocco Justus-Liebig University, Institute of Nutritional Science, Giessen, Germany Université Paris Cité, Service de Médecine Interne, Hôpital Européen Georges Pompidou, Assistance Publique–Hôpitaux de Paris, Paris, France Medizinisches Versorgungszentrum für Schmerzmedizin und Seelische Gesundheit Saarbrücken—St. Johann Health Care Center Pain Medicine and Mental Health Saarbrücken, Saarbrücken, Germany University of Brasilia, School of Health Sciences, Department of Nutrition
Assunto::	Doença celíaca Legislação Dieta sem glúten Política pública
Fecha de publicación :	26-ago-2024
Editorial :	MDPI
Citación :	FALCOMER, Ana Luísa et al. From struggle to strength: a multicentric study on how public policies for celiac disease transform lives. Nutrients, [S. l.], v. 16, n. 17, 2855, 2024. DOI: https://doi.org/10.3390/nu16172855. Disponível em: https://www.mdpi.com/2072-6643/16/17/2855. Acesso em: 11 nov. 2026.
Abstract:	This multicenter study aims to assess the impact of public policies (PPs) on the health-related quality of life (HRQoL) of individuals with celiac disease (CD) using the Celiac Disease Questionnaire (CDQ) and PPs for Celiac Disease Score (PPCDS). This cross-sectional exploratory study was conducted in four stages: first, standardizing data from countries using the CDQ; second, analyzing PPs aimed at CD patients; third, statistically examining these data; and fourth, associating HRQoL indicators with corresponding PPs. This study analyzed 15 CDQ assessments from 12 countries from 2007 to 2023. It found that comprehensive PPs positively correlated with HRQoL outcomes (Spearman correlation of 0.358). However, policies specifically targeting gluten-free meals and certification did not significantly improve HRQoL individually, suggesting they may be more effective when implemented together. Additionally, specialized health services did not notably reduce gastrointestinal symptoms, underscoring the necessity for improved patient education to enhance the effectiveness of these services. This study concludes that implementing and rigorously monitoring regulations to support CD patients is crucial for enhancing their HRQoL.
metadata.dc.description.unidade:	Faculdade de Ciências da Saúde (FS) Departamento de Nutrição (FS NUT) Instituto de Ciências Exatas (IE) Departamento de Estatística (IE EST)
metadata.dc.description.ppg:	Programa de Pós-graduação em Nutrição
Licença::	© 2024 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
DOI:	https://doi.org/10.3390/nu16172855
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