Título:	Diretivas Antecipada de Vontade em fase final de vida : reflexão à luz dos Direitos Humanos dos Pacientes em cuidados paliativos
Autor(es):	Lucena, Monique de Alencar
Orientador(es):	Araújo, Tereza Cristina Cavalcanti Ferreira de
Assunto:	Diretivas Antecipadas Processo decisório Assistência Paliativa Bioética Direitos do Paciente
Data de publicação:	3-Nov-2021
Data de defesa:	6-Ago-2021
Referência:	LUCENA, Monique de Alencar. Diretivas Antecipada de Vontade em fase final de vida: reflexão à luz dos Direitos Humanos dos Pacientes em cuidados paliativos. 2021. 144 f., il. Dissertação (Mestrado em Bioética)—Universidade de Brasília, Brasília, 2021.
Abstract:	An Advance Directive (AD) is a set of documents that explains the care and treatment of a patient in the event their capacity to make decisions is compromised, which seeks to preserve their autonomy, privacy, and dignity. Considering these assumptions, a study was conducted with the objective of learning and analyzing the beliefs of health professionals about the use of ADs in the decision-making process in end-of-life palliative care, under the Human Rights of Patients (HRP) theoretical framework. Empirical research in Brazil on this topic is scarce, so an exploratory, descriptive study with a qualitative approach was conducted. The sample consisted of 20 health professionals (13 nurses and 7 physicians) from a public hospital in the Midwest region of Brazil. A sociodemographic questionnaire and a semi-structured interview script were used for data collection. To analyze the interviews, IRAMUTEQ software was used. The reports obtained were also subjected to thematic content analysis. In total, six categories were identified concerning the perceptions of professionals on the topics covered, namely: death and dying in palliative care at the end of life; the health professional vs extreme end-of-life situations in the context of palliative care; the patient, under palliative care at the end of their life, as a subject of human rights; the patient-professional-family relationship in decision-making in end-of-life palliative care; ADs as a tool to promote autonomy and privacy in end-of-life patients; and bioethical aspects related to ADs in decision-making in end-of-life palliative care. The results of this study exposed contradictions concerning respect for bioethical principles during the practice of care in this context. It is also worth noting that the professionals interviewed reported having little information about ADs. Furthermore, insecurities were identified, notably those associated with insufficient legal protection in situations that involve observing the wishes and preferences of patients at the end of life. This study indicated that ADs can be a useful 'tool' in defending respect for the autonomy and privacy of palliative patients. Furthermore, it is worth emphasizing that respecting the HRP when carrying out any advance directives in this context of care can promote the recognition of human dignity. In conclusion, it is important to regulate ADs in Brazil, particularly based on the HRP. Finally, the present study concluded that it is necessary to encourage offers of training and qualification in bioethics and palliative care, to contribute to improving service to these patients and their families.
Unidade Acadêmica:	Faculdade de Ciências da Saúde (FS)
Informações adicionais:	Dissertação (mestrado)—Universidade de Brasília, Faculdade de Ciências da Saúde, Programa de Pós-Graduação em Bioética, 2021.
Programa de pós-graduação:	Programa de Pós-Graduação em Bioética
Aparece nas coleções:	Teses, dissertações e produtos pós-doutorado

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